Living with disability or life limiting condition?

Are you parenting a 5-18 year old? Does your child have experience living with a disability or life-limiting condition?

You may be eligible to participate in our research study.

What is the research about? We would like to speak to a range of people who are parenting and their adolescents about their thoughts on a general health questionnaire. The questionnaire might be used in research or clinical health settings and asks children (or their parents) to report on general difficulties with their: ‘mobility’; ‘looking after myself’; ‘doing usual activities’; ‘pain/discomfort’; and ‘feeling worried, sad or unhappy’. We are interested in ways we might improve this questionnaire to better meet the needs of children and young people who are living with life-limiting conditions or disability. The interviews would go for 45 minutes to 1 hour. You will be reimbursed for your time.

How to get started? Simply scan the QR code on the flyer to complete a short survey to express interest in participating in the study. We will only be selecting a small number of participants, and we aim to reach people with a range of different experiences. We may not contact everyone who completes the expression of interest survey.