Fantastic resources for families

We’ve been working with our friends at The Kids to bring these fantastic resources to life. Designed to put critical information about lung health into the hands of parents of children born prematurely, or adults who were born preterm themselves. There are two great fact sheets along with a helpful worksheet to note down important information you can take along to any appointments with health care professionals. Resources are free and available to check out on The Kids website.

World Prematurity Day Community Picnic

With World Prematurity Day (17 November) falling on a Sunday this year we are super excited to once again be having a Community Picnic to celebrate!

We welcome everyone to join us from 10 am to 1pm at Holyrood Pavilion and Park, Cambridge Street, West Leederville. We are partnering with The Kids for this event so there will be opportunities to hear the latest research impacting people born prematurely, we will also have face painting, a petting zoo and other family friendly activities. BYO picnic, suncream and picnic blanket.

This is a FREE community event however registration is encouraged. Those who register will go in the running for some amazing door prizes. To win you will need to be present when the door prize is drawn.

Every Week Counts Showcase Canberra

Recently Amber travelled to Parliament House, Canberra for the Every Week Counts Showcase. She was honoured to be the opening speaker of the event to discuss The Power of Consumers in the Collaborative. Amber has been a member of the Consumer Advisory Group since it’s inception and has been working with the WA groups for many years. More than 300 people attended this event from 65 hospitals all over Australia.

The Collaboratives initiatives for safely lowering the rates of earlyterm and preterm birth can be found here. So far participating hospitals have seen a marked improvement in their rates of earlyterm and preterm birth but there is still a lot of work to do! We are hopeful that future funding will enable more hospitals to participate in the program in the future.

Follow Up Guidelines for Comment

We’ve been working with a big team of people from all over Australia to write a new Guideline for Follow-up Care for Young Children Born Very Preterm. We know they are at increased risk of life long challenges and we also know that early intervention is critical. Unfortunately there has been no uniform approach to follow-up programs around the country. This new Guideline hopes to change that.

The Guideline is now in Draft phase and open for public comment. We welcome all people born prematurely, caregivers, clinicians, allied health professionals and other interested parties to reach the Guideline and provide feedback. More information can be found here: