Blog
The SurPre Model of Care is open for public consultation. This is a body of work designing a new follow up program for children aged 2-4 born very preterm. We have worked as part of the Steering Committee and Working Groups on this project. Have your say here:
https://www.crenewbornmedicine.org.au/our-news/news/2024/notice-for-public-consultation-the-surpre-model-of-care/
Public consultation closes 17/12.
It was so lovely to be invited to the Murdoch Children's Research Institute (MCRI) Preterm Research Connection to participate on the parent panel. The researchers in attendance all have a strong commitment to embedding the Lived Experience into their work.
It was fascinating to hear about the differences observed in adults who were born preterm and also hugely reassuring to hear of the similarities to their term born peers. The preterm born adults who shared their personal insights were remarkable and left many audience members with goosebumps.
Some researchers presented on the gaps within the system that continue to persist and highlighted why continued research and innovation is so important. We've been collaborating on several projects including the Guideline for Growth, Health and Development Follow-up for Children Born Very Preterm, which has now been published and endorsed by National Health and Medical Research Council and another relating to a Model of Care for follow-up. These pieces of work are great places to start, but they are not end points and require expansion, implementation, consideration of health equity across the Nation and more.
We look forward to continuing our relationship and working to solve some of these pressing issues.
People born preterm may exercise less, and at a lower intensity, than their term-born peers. They are also at risk of developing lung problems in later life. Exercise training can improve fitness and reduce symptoms caused by lung problems.
We are seeking adolescents and young adults (ages 12 to 35 years) who were born preterm, and parents of children (all ages) born preterm, to complete a brief (5 minute) online survey to understand the perceived need for an exercise training intervention for young people born preterm (Project ID: #45103).
The survey is anonymous and responses confidential. We are interested in all opinions, whether you (or your child) exercise a lot, a little or not at all!
You can complete the brief survey by clicking on the following link:
https://monash.az1.qualtrics.com/jfe/form/SV_7a1SsytE0491uAK
Interested in health and wellbeing in the very early and toddler years. This research opportunity may interest you.
Link to participate is: https://redcap.mcri.edu.au/surveys/?s=YHF3FK3JAFW4FELF
It’s always amazing to be part of the Telethon action! We loved being part of the Charity Trail and meeting loads of families. It is such a special event, this year the total truly blew us away. Being a Telethon beneficiary makes helping more families through our programs so much easier.
