How does the birth of premature children impact on parents?

Hi, my name is Angela Sheather.  I am a mother and a Psychologist. All three of my boys were born premature.  My eldest at 34 1/2 weeks and my twins at 27 weeks.  Throughout my experiences as a preterm mother, I always found it amazing how similar situations challenged and impacted parents in extraordinarily diverse ways.  What was different? 

Over the years I have privately researched the effects of preterm birth, searching for the answers to the many questions I have. This is where I came across the gap in the public literature around how parents cope and their level of social support. As a premmie mum, I am also interested in the question, if preterm parents, both mothers and fathers, have a higher rate of post birth mental health diagnoses compared to their term birth counterparts; and if they do, what are the diagnoses?  When the opportunity came along to investigate these questions, I grabbed it.   

This opportunity came through enrolling in a Masters of Clinical Psychology degree with Charles Sturt University.  As part of my thesis (research), I need to get insights from parents of children born premature. I am looking for parents, both mothers and fathers, over 18 years of age, whose children are 4 years or younger and are no longer in the NICU.  The survey takes approximately 20-30 minutes to complete. It needs to be completed in one sitting, as it cannot be saved to come back to later. The survey is completed anonymously to protect your confidentiality, and can be simply accessed by any computer with internet connection.   

If you would like to participate in the research, please click on the link below.   Your time and input will be greatly appreciated.

https://www.surveymonkey.com/r/XRPVXVT  

 

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Tranquil Soul Market Stall

Market stall at Tranquil Soul.

Market stall at Tranquil Soul.

Thankyou to Tranquil Soul in Port Kennedy for inviting us along to their Wellness Market.  It was great to get out in the community, raise awareness of high-risk pregnancy, prematurity and the issues facing babies in neonatal intensive care units.  Some attendees were truly shocked to hear almost 4,000 babies are admitted to neonatal units in WA each year!

Our Inkless Print Kits were a hit!  They make such a great gift for any newborn baby.  You can purchase via our web shop, postage on these is FREE Australia wide.'

Thanks again Tranquil Soul, we had a great day!

Developmental Playgroup Term 3 2017

Tiny Sparks WA  is pleased to open enrolments for our 'Developmental Play Group' for Term 3, 2017.

Who: Children 6 months to 36 months

When: Wednesdays 10:15 am - 11:45 am

Where:  Meerilinga Children and Family Centre Cockburn

Dates: 19 July, 2 August, 16 August, 30 August, 13 September

Cost: $45 per term

What: Physiotherapy, Speech Pathology and Occupational Therapy visiting at every session on a rotational basis. An opportunity for children to be monitored within a small group setting and for parents who have experienced similar journeys to meet in a safe environment with a strict wellness policies.  Places are limited to 12. Acceptance of enrolment is first in first served.

Grace's Story

Written by Mum Allyson.

Grace was my fifth pregnancy, having had one miscarriage at 12 weeks in between my first two children. I had three sons; 5 ½, nearly 3 and 15 months when Grace was born. My pregnancy had been difficult with regular bleeding and a hemorrhage at 18 weeks where I felt I had lost my baby but scans showed that I still had a fetus. 

Grace when she arrived at King Edward.

Grace when she arrived at King Edward.

I was on the last day of 23 weeks when I felt strong pains in the evening. I went up to the Albany Hospital and they gave me Ventolin to stop the labor. Initially I didn’t realise it was labor as I was induced with my boys. That seemed to settle so by 9am the next day when my husband, Richard, bought the boys to see me, everything seemed to be okay. By Midday my labor had progressed remarkably and I was being prepped to fly to King Edward as they thought the baby would be born soon. 

We were transferred to the awaiting Royal Flying Doctors airplane. The engines were going and Richard was being strapped in when my waters broke. The RFDS Midwife made a lifesaving call when she said I would be transferred by ambulance back to Albany Regional. It took them a very short time to get me back to the hospital when Grace was born encaul at 3pm on November 26 1997. She was just 24 weeks gestation and a very tiny little girl (585gms). The three doctors and one midwife decided to do everything they could to support her survival as they have since told me that she looked strong and healthy enough to try.

The hospital was not equipped for such a tiny infant and a friend has told me that all available staff were called to cut down tubes to help with her survival. There was no ventilator, so when they had successfully intubated her my GP spent just under six hours hand ventilating her. They called the Neonatal team who arrived by RFDS just before 9pm who stabilised her, which took quite a while and then flew her up to KEMH. I was told that up to 4 aircraft were involved in her birth and transfer. Regional families could not survive without the RFDS.

Grace spent 10 weeks on a ventilator and took two months to reach one kilogram. She was discharged after 4 ½ months from the nurseries at KEMH in April 1998.

This year she turns twenty and has done incredibly well. She graduated high school last year and is currently working at Bunnings for a Gap Year before she goes to Perth to study Social Work. Her plan is to work with the families of Pre-mature babies at King Edward or Princess Margaret.

I support Tiny Sparks WA and all the work they do because I have walked the journey of having a baby prematurely without support and being from the country it is even more isolating. I would have loved to have the nurture and encouragement that they offer to families when we were going through the difficulties that only those who have been through it can understand.


We welcome families sharing their stories on our blog.  If you would like to share your story please send approximately 500 words and a few photographs to admin@tinysparkswa.org.au with the subject 'Family Story'.