FROG study – Focused consumer Research priorities to improve Outcomes and Guide care for neonates with surgical conditions

Are you a parent or carer of a child who had major surgery as a newborn (within 1 month of birth), or a person with lived experience with major surgery as a newborn?

Please help us with a short survey. The survey is only open for people living in Australia and will be available until 16th September 2025. Previous work by our team has already identified a longlist of research ideas; now we need your help to select the ones that are the most important so that we can focus our research efforts on those.

The survey takes only 3-5 minutes to complete and is anonymous.

Parents, carers, and people with lived experience, please use this link to access our FROG study:

https://redcap.link/FROGConsumerPrioritisation

This will help us to ensure that our research is meaningful and acceptable to all our patients, their families, and clinicians alike. Let us work together to improve the lives of some of our most vulnerable children to give everyone the best chance to have a happy and healthy life.

FROG study – Focused consumer Research priorities to improve Outcomes and Guide care for neonates with surgical conditions

Light it up purple 2021

To shine a light on the critical issue of premature birth, each year a wave of light sweeps the globe at 7pm lighting as many buildings and landmarks purple as possible.  Since 2013 we have been coordinating lighting in Western Australia and the community support we have received has grown and grown.  We are delighted to have more venues than ever before lighting up purple this year.

You can visit the following locations to celebrate World Prematurity Day, 17 November:

  • Albany Town Square (14/11 only)

  • Alison Hartman Gardens, Albany (14/11 only)

  • Perth Children’s Hospital ‘Fizz’ (15-19)

  • The Kids’ Bridge, PCH (15-19)

  • Matagarup Bridge

  • The Sky Ribbon

  • Mount Street Bridge

  • Fremantle Prison Gatehouse

  • Optus Stadium

  • Perth Concert Hall

  • SJOG Hospital Mt Lawley

  • Broome Water Tower

  • The Bell Tower

  • Mandurah Bridge

  • Council House Perth

  • Yagan Square and Water Fountain

  • Elizabeth Quay

  • King Edward Memorial Hospital entry (15-19)

  • SJOG Hospital Subiaco

  • Trafalgar Bridge, East Perth

  • Eastern Goldfields Community Centre, Kalgoorlie

  • William Grundt Memorial Library, Kalgoorlie

  • Crown Casino

  • QV1 Tower

  • Brockman Street, Manjimup

  • Koombana Footbridge and foreshore, Bunbury

  • Marlston Hill Lookout, Bunbury

  • Marlston waterfront, Bunbury

  • Richmond Reserve, Bunbury

  • Arrol Centre at Jetty Road, Bunbury

  • The Navigators, Koombana Drive roundabout, Bunbury

  • Guppy Park, Bunbury

  • Rockingham Beach Foreshore

  • Graham Farmer Freeway Tunnel entrance

We would love you to get out and about to enjoy the purple lighting.  Huge thanks to everyone on the list above.  Please let them know what it means to you to see them light it up purple.  

Don’t forget to tag us when sharing to your social media @tinysparkswa #worldprematurityday2021 #neonatalnovember

**Please note this list is subject to change.