Meet PELICAN: A Global Network Interested In Lung Health After Preterm Birth

If you or your child were born prematurely, you might have heard about long-term health outcomes. One area that researchers around the world are focusing on is lung health. That's where PELICAN comes in.

PELICAN stands for Prematurity's Effects on the Lungs in Children and Adults Network. It was launched by the European Respiratory Society in 2020. PELICAN is a research collaboration bringing together clinicians, researchers and families from 33 countries around the world to pool data and answer some big questions about lung health for people born preterm. One of the Co-chairs Shannon Simpson is based at The Kids in Perth, Western Australia and our own Chairperson here at Tiny Sparks, Amber Bates is the lead Consumer on the Scientific Steering Committee.

The good news is that recent medical advances mean more babies born early are surviving than ever before. It’s time we move on from focusing in on survival and help these people thrive throughout life.  Some people born preterm will face life long lung health challenges. Researchers now use the term Prematurity Associated Lung Disease (PLD) to describe the lung health challenges that people experience following preterm birth. PELICAN's mission is to understand these challenges better and improve lifelong lung health for all people born prematurely.

PELICAN is building a global research network and data repository to help researchers understand how preterm birth affects lung health across a lifetime. They're collecting information from children and adults born prematurely, looking at lung function, respiratory health, and how different treatments and life experiences, especially those in the NICU and early life, affect lung outcomes. What makes PELICAN special is that it's creating a shared language and standardised measures for research. This means scientists from different countries can compare findings and work together more effectively to answer important questions about lung health after preterm birth.

If your child was born prematurely, PELICAN's research could offer valuable insights into what to expect, how to support their lung health, and what treatments or interventions work best. By connecting families with researchers and clinicians globally, PELICAN helps create better outcomes for children born too soon.

PELICAN has recently launched an Instagram page @pelican.network to help them directly connect with community members about important information. To share resources, stories and learnings and help you unpack the science in an easy to understand way.

Developmental Playgroup Term 1 2017 Enrolments Open

Tiny Sparks WA  is pleased to open enrolments for our 'Developmental Play Group' for Term 1, 2017.

WhoChildren 8 months to 36 months

When: Wednesdays 10:15 am - 11:45 am

Dates: 1st Feb, 15th Feb, 1st Mar, 15th Mar, 29th Mar

Cost: $45 per term

WhatPhysiotherapy, Speech Pathology and Occupational Therapy visiting at every session on a rotational basis. An opportunity for children to be monitored within a small group setting and for parents who have experienced similar journeys to meet in a safe environment with a strict wellness policies.

Click here for the enrolment form to applyPlaces are limited to 12. Acceptance of enrolment is first in first served.

Term 4 Developmental Playgroup - Enrolments now open

Tiny Sparks WA  is pleased to open enrolments for our 'Developmental Play Group' in Term 4, 2016.

WhoChildren 8 months to 36 months

When: Wednesdays 10:15 am - 11:45 am

Dates: 26th Oct, 2nd Nov, 16th Nov, 30th Nov, 14th Dec
(Note the term starts in week 3 rather than week 2 as Meerilinga has an open day on Wednesday week 2)

Cost: $45 per term

WhatPhysiotherapy, Speech Pathology and Occupational Therapy visiting at every session on a rotational basis. An opportunity for children to be monitored within a small group setting and for parents who have experienced similar journeys to meet in a safe environment with strict wellness policies.

Places are limited to 12. Acceptance of enrolment is first in first served.

Update: Enrolments are now closed.

Developmental Assessments - the how, the what, the why

We are pleased to announce our April 2015 workshop will be presented by Dr Catherine Campbell, Clinical Psychologist. Dr Campbell is experienced at conducting developmental assessments of infants that fall under the follow-up program at King Edward Memorial Hospital.  As an interesting side note, she also works with the Australian Men's Hockey Program!

In this workshop, Dr Campbell will help you understand the how, the what and the why of developmental assessments. There will be the opportunity for you to ask questions, although please note this is not an individual consultation session. 

The King Edward Memorial Neonatology Clinical Care Unit provides developmental follow-up for babies who have problems after birth. These may include:

  • Preterm birth (before 32 weeks gestation)
  • Birth-weight less than 1500 grams
  • Major surgery in the neonatal period
  • Seizures or fits
  • Very poor condition at birth
  • Serious illnesses such as meningitis

The program monitors your baby’s progress through early life and provides expert advice and intervention where appropriate. Your baby needs follow-up at regular intervals:

  • Soon after discharge
  • At four months
  • At eight months
  • At 12 months for a detailed developmental assessment (Griffith’s Test)
  • Some babies may be recommended for longer-term follow-up. 

The workshop will be held in Subiaco at the Tom Dadour Centre on Tuesday the 14th of April 2015 at 7pm.  It is open to all families affected by high-risk pregnancy, premature birth or having a sick newborn.  To register for this workshop please visit the registration page.



Look at me now!

We are delighted to present you with a number of images taken for our 'Look at me now!' campaign.  This initiative is designed to provide a high impact, emotive image which shows in a very straightforward manner just how far the children have come since their stay in NICU/SCN.

These little super stars will be on display at most of our public events, their images will also be used on our website and in marketing materials.  A huge thank you to each of the families who participated.

Click to enlarge the images.

Mia born 23 weeks 4 days, 645g.  Came home on oxygen but is now a in pre-primary and thriving.

Twins Logan and Blake born at 26 weeks 2 days weighing 1070g and 945g.

Harley born 33 weeks, 1810g due to PE.

Hayley born 24 weeks 5 days, weighing 740g now a very happy kindy kid.

Aaleyah born 33 weeks 5 days, 2170g due to PE.

Aurora born 31 weeks 1 day, weighing 1410g due to HELLP syndrome.

Hayward born 27 weeks, 870g due to pre-eclampsia.

Mark born at term with stage 2-3 HIE, meconium aspiration and seizures.

Dakota born 32 weeks, 1700g, required full resuscitation at birth.

Noah born at term with a complete heart block requiring admission to NICU and fitting of a pacemaker.


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