Alexander

For Lance and his wife Sonia, Alexander's early arrival was a total shock!  Having watched his son fight for life in the neonatal unit Lance was inspired to make a difference and is currently training for White Collar Boxing Fight Night #11 being held at the Perth Convention and Exhibition Centre on June 15.  Tiny Sparks WA are directly benefiting from this event and we encourage everyone to come and cheer on Lance, and all of the other fighters.  You can buy your ticket here.  

Alexander's story as written by Mum Sonia is below.

The early arrival of Alexander

We were having a most uneventful pregnancy. When I was 28 weeks pregnant, one Sunday I started having some tummy pains, thinking I’d eaten something unfortunate. They continued on the Monday and I left work thinking, ‘that is a bit weird, I’ll call the hospital on the way home’. That was a Monday afternoon and I didn’t go back for 6 months.

The midwive’s view was I might have an ‘irritable uterus’ (!), to go home, drink some water and have a lie down and call her back if they got worse. By 9pm that night, I had a gut feeling something was up and I had Lance take me to hospital. In amongst some serious eye rolling and lack of interest among the midwives (you could just here them thinking ‘first time mum overreacting’). Until they put me on the machine to see what’s going on and their faces changed quite abruptly with a ‘I’m going to go and phone your Dr’. When he appeared 10 minutes later, we knew something was up. Although I was contracting, I wasn’t dilating. A leisurely ambulance ride to KEMH, a very late night for us all and quite a few pills and jabs, I was settled in KEMH where I stayed until the following Friday, the contractions having settled down quite a bit. I’m not sure whether the staff were hopeful, or whether they had a feeling of what was going to happen, or whether we were just incredibly naïve, but we didn’t get a real sense of the traumatic events which were about to unfold. 

The contractions came back mildly on the Saturday and we had another trip to KEMH that Saturday afternoon only to be discharged again as I wasn’t dilating and the contractions didn’t seem to be getting worse. They continued to tell us we weren’t in actual labour and not to worry. 

I had a quiet day on the Sunday, only really getting off the couch to pot out some new plants I’d bought and then my thoughtful husband, trying to distract me from the increasing cramps and anxiety, thought a walk around the block would assist! After all, we weren’t ‘in labour’… I didn’t go very far and was pretty exhausted so we went home. Needless to say, the contractions started to increase but again, having to be told we weren’t ‘in labour’, we didn’t rush off to hospital. Instead I cooked perhaps the best salmon dish I’ve ever cooked (and subsequently lost the recipe). A couple of hours later about 9pm, the pains were just too much and I told Lance to take me to the hospital. Between leaving our house and the 10 minute drive to hospital, the labour pains became intense to say the least. Poor Lance was having to try and keep me calm and drive as quick as he could – it was like a scene from a movie! 

When we got to the hospital the poor orderly didn’t know what to make of this screaming banshee woman, and rushed me up to the maternity ward. By this time the contractions were almost constant. Needless to say, all hell broke loose as this maternity ward was definitely not used to 29 week pregnant women presenting in full labour. Our incredible doctor turned up in minutes and calmed the scenario but with a ‘you are 10cm dilated, this baby is arriving tonight’. Not the words you want to hear. 

This time I got a very, very quick ambulance ride over to KEMH with midwife in tow and the last thing the Dr saying before he closed the doors was ‘try not to push’. Lance tried to follow them but said he lost them when they were going over 120km/hr through the tunnel and through red lights. 

When we got there we had an army of doctors and nurses waiting, each trying to explain what was about to happen and what they were going to do with the baby once he arrived etc. I was still contracting and really not in a great space, so poor Lance was having to deal with difficult questions and explanations. 

Once I’d had an epidural, I seemed to become human again, and they recapped what they’d gone through. It was a very, very sobering experience, to be told your baby ‘should’ be ok, but they are going to have to put him on a ventilator as soon as he comes out and take him straight to intensive care. 

When you see babies being born on TV, they come out a bit purple and usually screaming. We got a very small, not moving, silent baby, who was quickly whisked off to the trolley with us wondering whether he was even alive. A tiny squeak reassured us he was and Lance smiling and saying ‘it’s a boy’! A team of doctors and nurses surrounded him and escorted him, with Lance, up to the NICU, where I wouldn’t see him again for what felt like an eternity, but was only about 3 hours. 

Despite the nurses telling me to get some rest (you get some rest after that!), one nurse took pity on me and wheeled me down to the NICU about 6am, after a strict hand washing, to see my tiny baby boy covered in cling wrap – and tied up to all these wires seemingly powered by this giant machine and beeps and noises everywhere. Alexander also had an incredibly bruised face – he looked like he’d gone 6 rounds with Rocky – as he had been a face presentation because of his small head size and the forceps had injured his left eye a little. This is not what you expect to be greeted with when you deliver a baby. 

Having been sent home with instructions also to rest (yeah right), Lance was also back at Alexander’s side minutes after I’d got there, and we could finally meet our son together. I think we were still in shock and it was hard to comprehend everything the nurses were telling us. But we took comfort in knowing he was stable and he was a good weight at 1.3kg (3 pound) for a baby born at 29+3 weeks. 

That gestation – “29+3 weeks” becomes tattooed to your brain and it almost becomes a label for you and your baby to wear while in ‘hospital land’. 

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The following days and weeks almost blur in together but consisted of trying to get into a bit of a routine of drop Lance at work – head to hospital – sit beside crib – pump every 3 hours – more sit beside crib – short break at the cafeteria for lunch – more sit beside crib – more pumping – more sit beside crib – pick Lance up from work – find something for dinner – head back to hospital together for a few hours – home – more pumping every 3 hours. Repeat. Every day felt like 100 years. Every beep in the room made your heart stop until you realised it was someone else’s baby de-statting and you were grateful it wasn’t yours. You were so grateful to do Cares as it meant you got to actually touch your baby properly (even though you were too scared to move them in case they broke) and actually partially feel like you were being a mother. 

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Kangaroo cuddles were the highlight of each day. It was always a balance of which nurse was on duty as to how long the cuddle was. It was so incredibly frustrating and heart breaking not to be able to pick your baby up whenever you wanted to. We constantly had to fight with the nurses to hold onto our baby for a bit longer, with the nurses saying ‘his temperature will drop’ or ‘you can’t overstimulate him’. I got to the point that when I got there in the morning, I’d ask to have him for a cuddle and then I’d just hold onto him for as long as my bladder would last. Usually I managed a couple of hours, with a few dirty looks from nurses when I refused to give him back, and a few notes written up in my book so I’m told! Keeping in mind he was always stable and he wasn’t sick – just small, so my heart told me  he was better on me than in a crib. When he was with me his temperature was always more stable, never had a de-stat and you could tell he was happier. I certainly was. I think it also helped get us through a lot quicker. That, and they had an influx of premmie babies in that November, so we were discharged back to our original hospital when Alexander was still 34 weeks gestation (4 weeks after being born), to ‘fatten up’ as the doctors said. 

When we arrived at our original hospital, the nurses weren’t very interested in us except as an extra hassle as then someone had to man the nursery 24/7! As a consequence, I could cuddle him, feed him, bathe him, any time I liked and there were no nurses there telling me what I could and couldn’t do. After asking permission to pick him up the head nurse actually said (and I’ll never forget her words) “He is your baby, do what you like”. I didn’t know whether to cry or hug her. 

Close family members were able to come and meet him and it was actually becoming real we had a proper baby. We hit the 2.5kg mark on Saturday, 10 December and at 35.5 weeks gestation we were allowed home. It was a 44 degree day and we were panicking that we were actually allowed to take this baby – now what we were going to do with him? 

We survived, but it was a tough road. We were still limited in where we could take him, who we could let cuddle him, so we still couldn’t be as free as other first time parents and that was tough. 

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We were so, so incredibly lucky though. Alexander just grew and grew, he eventually hit his milestones and continues to do so. We have managed to avoid any serious long lasting effects of him being born premature, and at 4.5 years old he is starting to overtake his friends in height and weight. He is very resilient, very smart and a kind and sensitive little boy, who is our super hero. 

4 Years and 1000 Care Packages

Can you believe we have been delivering Care Packages for 4 years now?  It seems to have come around so fast!!  On the 4th anniversary of our very first delivery to King Edward Memorial Hospital (Perth), we delivered our 1,000th Care Package!  Our first delivery consisted of just 10 packs and now we are delivering in excess of 50 packs per month.

It's quite incredible to know that we have raised more than $40,000 specifically for this program over the last 4 years and provided families in neonatal units with goods exceeding $95,000 of retail value!!  WOW!

Each of our Care Packages is sponsored by an individual, family or business and each pack contains a personal note of encouragement or support.

We are very grateful to the Western Suburbs Weekly for attending our 1,000th Care Package Delivery and writing an article which you can read here.

It was lovely to meet Mum Sophie and heartening to hear that her daughter Scarlett is making progress every day in the neonatal unit.

We are so grateful to everyone who has sponsored a Care Package over the last 4 years.  We hope to support more families in the future by expanding our program to reach more of the 4,000 families whose babies are admitted to the neonatal unit in WA each year.

To send your own message of support and help us in our endeavour to support more families, please donate a care package.  Your donation is tax deductible.

Agnes Walsh Project

Give a little. Change a lot.
This is an End of Financial Year project like no other, and there is room for every West Australian to be a part of it!
Find out all the details including how you can be involved from Co-founder Amber.

To make a donation visit https://give.everydayhero.com/au/agnus-walsh-project

If you can help with any of the other requests please e-mail Amber directly on chair@tinysparkswa.org.au

Thank you!  Together we can make a difference!

White Collar Boxing Fight Night #11

After the amazing success of last years charity fight night RingSide Boxing and Fitness Perth together with White Collar Boxing are hosting charity fight night #11!  Proceeds from the evening will be shared jointly between Tiny Sparks WA and Woman and Infants Research Foundation.

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For 8 weeks novice fighters will be living the life of a Professional Boxer at RingSide honing their skills, culminating in a Las Vegas Charity Boxing night at Perth Convention and Exhibition Centre on June 15 commencing at 5.30pm.

Tickets are available from Ticketbooth.

Buy Tickets

RingSide are still seeking some sponsors for the event.  If you are keen you have your business showcased in a unique way please contact Donna (Promoter) on 0411 043 313.


Fundraising events like this help us ensure the future of our programs.  Please share in your networks to help make this event as successful as possible!

Thank you.

Welcoming Baby Spa Perth

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We are delighted to welcome Baby Spa Perth as a Supporter of Tiny Sparks WA.  They have very generously donated hydrotherapy and massage vouchers to be included in our care packages which are distributed to the smallest and sickest of WA's babies admitted to neonatal units.

Chairperson Amber with Director Anita collecting the gift vouchers.

Chairperson Amber with Director Anita collecting the gift vouchers.

Anita, Director of Baby Spa Perth advises there are a range off benefits to babies, especially those born sick or preterm, once they are discharged from hospital.

HYDROTHERAPY BENEFITS 

The sensation of floating in warm water puts babies completely at ease and can promote a number of key benefits:

  • Muscular and skeletal strength is increased through the water’s gentle resistance.

  • Movement through the water has a positive effect on the digestive and circulatory systems, which can reduce meconium levels and lowers the risk of jaundice three or four days after birth.

  • Subtle water pressure on the chest can increase lung capacity by strengthening intercostal muscles and the respiratory system.

  • Regular visits can benefit the cardiovascular system.

  • Innate swimming reflexes are stimulated and co-ordination is developed as they learn to control their movements.

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MASSAGE BENEFITS FOR BABY

  • Promotion of parent-child bonding and secure attachment. This in turn facilitates their emotional and cognitive development (i.e. ability to learn)

  • Supports the stimulation of digestive and circulatory systems, reducing the discomfort of constipation and colic 

  • Relaxation - the combination of being in warm water along with massage promotes relaxation and supports the improvement of sleep patterns lead-ing to improved attention, working memory and emotional regulation in children

Lauren Catalano took her son Lenny regularly to Baby Spa Perth.  Here is what she has to say about the experience.

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Our first visit too Baby Spa Perth was the day after our second son Lenny was discharged from the NICU at King Edward. After being born at 24 weeks, I made it my mission as his mother too give him the best alternative therapies outside of the hospital once he was home to allow his body to heal and thrive.

Baby Spa Perth soon became a weekly ritual for Lenny and I, Lenny grew to love the water and instinctively relax as soon as the therapist would warm the oil between her hands. The benefits were clear after just the first visit, and then even more so after a few weeks. I have no doubt in my mind that Baby Spa Perth has contributed too Lennys amazing development and health.
THANKYOU Baby Spa Perth for your gentle and loving care that you gave too both Lenny and myself during our time at Baby Spa Perth.
I would highly recommend any mother too take their baby to Baby Spa Perth.
— Lauren Catalano

We are grateful to Anita and her team for their ongoing contribution towards our care package program.  The vouchers will provide parents with a safe place to take their baby for a relaxed bonding experience in their first few weeks after discharge.

Please consider sponsoring a care package, providing essential items and sending a personal message to a West Australian family in the neonatal unit.  They need our support!